Tuesday, January 3, 2012

Anyone have a relapse with their Thyroid cancer?


It's been a while since I wrote anything. Honestly, there isn't much on the way of Thyroid cancer talks. I am not one to complain (that much) anyway!

I was wondering since its a new year has anyone had a relapse of Thyroid Cancer?

I noticed a "hard" ear. I went to MD Anderson to look it up in their library. We spent a long time searching. Only a few pages on what causes it.

I think it's from the internal radiation. Hardness the cartilage in the ear. Weird though, is it didn't harden my cartilage in my nose! : )

Anyone else have this problem?

Thursday, September 4, 2008

Lab Test - Answers

I was chatting with a fellow member and she gave me a link to look at.
Here is the limk.


Wednesday, November 7, 2007

I'm still here!

I haven't written on my blog for a while because I haven't had any news except that my IODINE levels were high and everything since (MAY 2007) had to be postponed! The doctors put me on a LOW iodine diet for weeks and weeks, then put me on a new medication. It's now NOVEMBER 2007 and I just finished going through the I-123 body scan, the I 131 Whole Body Scan and the first dose of liquid Radiation 100 dosage. In the next few days I will write about the experience, which I just came home a few days ago.

Sunday, July 22, 2007

Thyroid Talk on Google - My email - send outs etc.

Group address Current web address:
Current email address:

This is another part so I can sent out mass emails etc to a group of people. It's currently under construction.

Tuesday, May 22, 2007

My First Day at MD Anderson Cancer Center - Houston, TX

Getting here took longer than I thought. You need to take at least an hour more than you think to get here because of traffic and parking. Your first visit, you can valet park for free one time only, which is normally $10/day. Don't forget to take your ticket with you.

Things you don't want to forget:

1. Your eight page patient questionnaire (filled out, of course. This took me about an hour to complete)

2. If you have a living will and power of attorney, bring it with you.

3. You will have to provide a letter that states that you wish to be/or wish NOT to be resuscitated if you fall outside the building, in an ambulance, etc. If you don't have one, you will have to bring it next time.


Dr. Fareau - endocrinologist - fellow. He's leaving.

Dr. Busaidy - associate professor - endorcriologist

Behaves as Papillary Thyroid Cancer, not follicular.

5% - familial

10% - radioactive exposure

90% - unknown

Mostly women

Radioactive Iodine - recommends if more than 1 cm and in more than 1 area even if full body scan is negative.

Hypothyroid makes thyroid hungry for iodine.

Need to wait 2 months after CT Scan with cold iodine (due to cellulitis) before Radioactive Iodine.

TSH Suppression - keep cancer away. - Slightly Hyper thyroid. - Be hungrier cuz metabolism quickens

thyroglobulin should be 0. 30% have antibodies to thyroglobulin. I am 30+. They want it both to go to 0. Can persist up to 2 years. Not as helpful to use Thyrogen for people who are antibodies. Just harder to follow when you are positive. Not harder to treat.

How to prepare for radioactive iodine treatment:

Old: No thyroid hormone.

3-4 weeks Cytomel - T3 hormone (active form) short acting. t4 takes a couple weeks to come out. Helps to take the edge off of hypothyroid. More for feel.

Can do 24 urine test to check iodine levels. Special "white" bag. Has two urine holders that you MUST keep cool, either in it's own refrigerator (like me) or in a ice chest, and a urine catcher. It measures how much and has an easy pour spout.

Thursday - Call AM May 31st. Email RE: results and when to schedule radioactive iodine. 6 months after - ultrasound and blood work. June 2008. 6 mo/6mo/1 year of all negative. 1 year annually for life. Synthroid the day after radioactive iodine treatment (drink).

Whole body iodine scan. 30 minutes roughly time.

Whole week of fun.

Start your pee test in AM. Discard your first. End 24 hours later....but need the first morning pee the second day. Keep it cool in refrig. Need to give within 2 hours after your last pee or you will have to do it again. You have to get it to the lab ONTIME!!! Must have your label on the top or side with your full name and patient number and doctor. In order to drop it off you go to the lab on the second floor and sign in for the drop-off. Then you set it behind the counter when called. You get the results from your nurse in about three days.

Bring to 2nd floor - diagnostic center.

Nurse - Linda Bracks - we like her. She has been there for a while you can tell, happy, informative, pleasant to be around.